By: Emma Comery An ALS diagnosis comes out of left field. When Christa Thompson’s husband, Olin, was diagnosed in December of 2018, they were left with dozens of questions and little guidance. “Lou Gherig was diagnosed 80 years ago,” Christa reminds us, “and his doctors essentially had the same story…

By Emma Comery “ALS Doesn’t Stop. We Can’t Either!” This was the rally cry of the 2020 ALS Advocacy Conference. When the conference on Capitol Hill was cancelled due to Covid-19, there was a brief moment of disappointment and concern before advocates straightened their shoulders and got to work on…

By Melinda Mayden This year’s ALS Advocacy Conference, put on by the ALS Association, looked a bit different in 2020 over computer screens and Zoom links, as did everything else this year. But as the resounding rally cry of the conference went, “ALS does not stop, and neither can we.”…

By: Emma Comery, SimpliHere My parents have this small blue throw pillow sitting on their living room couch. It reads, My family tree is full of nuts. A gift from a cousin — a charming, self-deprecating little novelty. My mind flashes back to that pillow again and again while I’m…

An ALS Blogger Inspires Thousands To Share Their Stories Anyone who thinks being diagnosed with a terminal illness means their life is over needs to meet Sunny Erasmus. Since her doctor confirmed her ALS diagnosis in 2016, Sunny has committed herself 100% to living her best life.

SimpliHere is dedicated to forging and preserving community connection for ALS patients and caregivers. Community is not only a cornerstone of our mission as company, but the pulse of the ALS army. …

With Black Friday under our belts, the holidays are rushing toward us like a team of reindeer, and 2019 isn’t far behind. The new year brings new goals, new resolutions, a crisp new wall calendar, and lots of political changes. As a result of the 2018 midterm elections, 100 women…

You’ve Got This: 5 More Tips For ALS Caregivers When you’re deep in the trenches of ALS, your perspective is thrown all out of whack. You’re doing everything you can to keep your PAL happy and comfortable, you’re worrying if you’re doing more harm than good, and half the time you’re making it up as you go along (because…

Cold. It was really really cold. Like, so-cold-it-burns cold. Like, I-can’t-feel-my-skull cold. Like, it-was-a-super-long-week-and-I-drank-my-frozen-daiquiri-too-fast cold. Weirdly, though, that cold felt good. And it wasn’t just because it was August and I was sweating so much you could fill a swimming pool with it. It felt good because about three seconds…